B.C. Health Minister Probes Child's Case

This is a B.C. news story, published by vancouversun, that relates primarily to Charleigh news.

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replacement infusions

vancouversun

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Health

B.C. looking into case of Langford girl losing life-saving-drug funding

Summary

Nutrition label

69% Informative

Charleigh Pollock, 9 , is the only child in B.C. with Batten disease and one of fewer than 20 in Canada .

A committee recommended last week that funding will soon end for the enzyme-replacement infusions she receives biweekly for the rare neurodegenerative disorder.

Charleigh faces “rapid deterioration, irreversible loss of function and ultimately death,” her mother says.

Health Minister Josie Osborne has directed staff to “urgently review all of the facts”.

Charleigh is now the first child in the world to have this treatment discontinued, Day says.

Day says in a publicly funded health-care system, the $1-million annual cost should not be a deciding factor in “whether a child lives or dies” Fales said she wasn’t expecting to have to fight to keep her daughter on the drug.

VR Score

Informative language

Neutral language

Article tone

informal

Language

English

Language complexity

Offensive language

not offensive

Hate speech

not hateful